Health Data Research Innovation Gateway
Health Data Research UK is the national institute for health data science and its mission is to unite the UK’s health data to enable discoveries that improve people’s lives. The Health Data Research Innovation Gateway provides a way to search and discover datasets and guidance on making health data available to researchers and innovators.
Data use register
The Data use register provided below relates to data use cases approved at University Hospitals Birmingham under which data has been provided within ethical permissions.
It shows what researchers are doing with the data so patients and members of the public can feel confident it is only being used in the right way and for the right reasons.
For further information relating to data use cases for INSIGHT Data Hub, PIONEER Data Hub and West Midlands Secure Data Environment these will be available at the Data Hub webpages via the Access Heath Data Page.
| Project Title | Lead Applicant Organisation | Latest Approval Date | Access Type | Link |
|---|---|---|---|---|
| Development and feasibility testing of a digital platform to capture patient reported outcomes (PROs) for CAR-T precision cellular therapies: A multiphase, mixed-methods study (The PRO-CAR-T Study) | University of Birmingham | 23/05/2025 | Data Licence Agreement between the collaborating organisations using secure and controlled data analysis environments. | |
| Role of radiomics for differential diagnosis of adrenal tumours | University of Birmingham | 13/03/2025 | Data Licence Agreement between the collaborating organisations using secure and controlled data analysis environments. | |
| A study to assess the determinants of aortic stenosis progression and to understand strategies which may delay/halt disease progression. | University Hospitals Birmingham | 29/01/2025 | Data released via Letter of Authorisation. All researchers have received training in the care, use and protection of personal data, enabling them to comply with their responsibilities under the Data Protection Act. | |
| The Benefits of Dedicated Cardiology Diagnostics in Acute Medicine. | University Hospitals Birmingham | 28/01/2025 | Data released via Letter of Authorisation. All researchers have received training in the care, use and protection of personal data, enabling them to comply with their responsibilities under the Data Protection Act. | |
| An observational cohort study examining the presentation and clinical pathway followed during diagnosis and treatment of refractory and unexplained chronic cough (RCC and UCC). | University of Birmingham | 19/12/2024 | Data Licence Agreement between the collaborating organisations using secure and controlled data analysis environments. | |
| Identifying and mitigating biases in perioperative prognostic models and clinical scoring systems | University Hospital Birmingham | 11/07/2024 | Data released via Letter of Authorisation. All researchers have received training in the care, use and protection of personal data, enabling them to comply with their responsibilities under the Data Protection Act. | |
| Pharmacy Homeless Outreach Engagement Non-medical Independent prescribing Rx (PHOENIx) community pharmacy-based pilot randomised controlled trial | University of Birmingham | 18/06/2024 | Data Licence Agreement between the collaborating organisations using secure and controlled data analysis environments. | |
| Blood Testing in Inpatients – Computer-driven or Clinician Choice – getting it right for patients. | University Hospital Birmingham | 13/05/2024 | Data released via Letter of Authorisation. All researchers have received training in the care, use and protection of personal data, enabling them to comply with their responsibilities under the Data Protection Act. | |
| PhenoAge as a predictor of outcome in acute admissions with Covid-19 | University of Birmingham | 21/02/2024 | Data Licence Agreement between the collaborating organisations using secure and controlled data analysis environments. | |
| Post-operative acute kidney injury in major non-cardiac surgery – a retrospective study to identify epidemiology and risk factors | University Hospital Birmingham | 09/02/2024 | Data released via Letter of Authorisation. All researchers have received training in the care, use and protection of personal data, enabling them to comply with their responsibilities under the Data Protection Act. | |
| Three-dimensional reconstruction of anal fistula images using machine learning | University of Birmingham | 15/01/2024 | Data Licence Agreement between the collaborating organisations using secure and controlled data analysis environments. | |
| Evaluating the clinical utility of CPET parameters in Adult Congenital Heart Defect (Fontan and Tetrollogy of Fallot) | University of Wolverhampton | 15/01/2024 | Data Licence Agreement between the collaborating organisations using secure and controlled data analysis environments. | |
| DETERminants of progressive fibrosis and poor health outcomes in Interstitial Lung Disease (DETER-ILD) | University Hospital Birmingham | 27/10/2023 | Data released via Letter of Authorisation. All researchers have received training in the care, use and protection of personal data, enabling them to comply with their responsibilities under the Data Protection Act. | |
| Comparison of two physiotherapy interventions | Birmingham City University | 07/06/2023 | Data Licence Agreement between the collaborating organisations using secure and controlled data analysis environments. |